Mason is continuing to do well off the vent. His oxygen support through his nasal cannula is 21% (equal to room air) and his pressure support remains at 2 L flow. This flow helps him to breathe without too much effort. We are unsure if he will come home with his nasal cannula. It all depends on how much weight he is able to gain with his feeds. Without the extra flow he may have trouble gaining weight since he will be using lots of calories to breathe.

Feeds are a totally different story. The first NJ tube Mason had worked great and then he pulled it out. The second tube was placed and ended up clogged with contrast used during the x-ray procedure. A third tube was placed and this one ended up kinked. Today Mason went down for another tube, yes his fourth one. This time they put a large one in...I'm talking garden hose large. I think they use this size for 6 month old. I guess they didn't want this one to kink or clog. At this point we will take whatever will allow him to come home. His feeds have started again today at 5cc's per hour and will continue to go up every 12 hours as tolerated. His new goal is 20cc's.

Mason loves to be held. We are able to hold him all the time now. Both sets of Grandparents have been able to hold him and I think he fell asleep for all 4 of them. He is very awake now since he is almost completely weaned off of his methadone and sedation meds. He enjoys looking around and checking everything out. His latest nickname is "Professor Ellinger".