Mason's first 24 hours home has gone pretty well. He even had his first bath here at home tonight. He smiled a few times and we think he really enjoyed it. After the bath we had to re-tape his tubes on his face since the old tape was starting to fall off. Needless to say he did not enjoy that part.
We had a visiting nurse come to the house today to check up on him. His vitals were good and he has not lost any weight. In fact, it looks like he is still gaining. Tomorrow we have our first visit with his pediatrician. Thursday the visiting nurse comes back in the morning and in the afternoon he has occupational therapy at UofM. Next week we have a visit to the Pulmonologist to check up and decide what to do with his oxygen. The following week we have a visit with his Pediatric Surgeon for a check up and chest x-ray.
So far the hardest part has been trying to find time for everything. Just the meds (he has 9 them) and his feeding (continuous 20 cc's per hour) take up a lot of our time. We are trying to make enough time for normal baby things and I have to say it has been tough. Our goal has been to get him to bed around 8 or 9pm to stay with his schedule in the NICU and we have missed our mark by about 2 hours each night. I am sure once we get organized and get our routine down it will get easier.
I will try and post some pictures soon....
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4 comments:
Dear Mom and Dad,
First, thanks for the "Home" update.
And, you are probably doing just as well if not better than most new moms and dads if you are only about 2 hours off schedule.
But, as much as we look forward to your updates and enjoy them, at 11:30, may I suggest you go to bed and think about your immediately family needs (sleep) knowing that your extended family will be patient and understand if there isn't an update.
Enough of a lecture from this old grandma.
It is exciting, and especially worthy of much prayer that Mason is home where he belongs. We will continue to pray for ongoing success in his growth and development. May each and every doctor's appointment bring news of continued progress.
An Alcona Friend,
We were so happy to hear the good news! We were just smiling picturing you all at home! I hope you guys get used to things soon and hopefully he won't need the feeding tube and o's for much longer. We made a spreadsheet to keep track of meds and feeding. Sometimes things get a little foggy in those wee hours and it really helped keep us on track. Good luck, hang in there, and if you need anything please call!
The Bakers
Just so you know, with all the stuff you have going on, 2 hours after the NICU schedule is nothing. We went on vacation for a week, in MAY & still can't get PArker back on his normal schedule & school starts in 13 days!! He's 3 & a little harder to get back on track, but I'm sure you'll get it in no time. HOnestly, it take about 3 days of consistance to get it back at that age, (once you get to teh schedule time) for him to come back around to the right time. It lengthens as they get older. Although, we're not as consistant as I'd liek to believe! :)
I'm so excited you're all there together!!!!
How exciting it is that Mason is finally home. I'm sure you have your hands full. We will continue to pray for his progress. Had a great time at the shower. Rest when you can and enjoy your precious little person!
Aunt Nita and Uncle Mick
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