Mason is still doing great. He is having a blast this summer with water! You name it, we have done it! He loves his baby pool, sprinkler, water table, big pool, local spray/splash park or just a plain 'ol bucket of water with some toys to splash in.
Physically he is doing wonderful. His PT sessions at UofM did wonders for him! He is moving around like a typical 2 year old. Right now we are working on jumping and walking up/down the stairs. We are also doing some balance beam work. Mason just had a check-up with his Physical Medicine doctor and....drum roll please....there is no more concern for cerebral palsy! Looks like it is totally out of the picture. She will see him one more time in 6 months and then he will be discharged from her service.
Onto more good news...his lung function test in June came back with results consistent with his last test. He still falls within a low normal range for kids his size and weight. He has mild air trapping and low compliance which are signs of his chronic lung disease. I am so amazed at the progress he has made in this area! His Pulmonary doc decided it would be best to stick with the current breathing treatments for now.
The latest development in Mason's care is a new consultation with an intensive feeding clinic in Grand Rapids. We see them on September 10th to discuss Mason's feeding progress. Feeding for him is really an up/down roller coaster. Some days are good (for him this means some drinks of water and a taste of cracker) while others are bad (complete refusal of anything food/drink related). We haven't really been able to make much progress and it seems that we are having more bad than good days lately. I will post more later...
Mason has been a wonderful big brother to Isabel! He loves to bring her toys and try to give her a pacifier. He also loves to tickle her and pet her head. When he sees her every morning he says "Hi baby!". He looks for her when she is napping in another room and shows concern when she is crying. He also has the knack for making her laugh really hard! He is such a sweet boy!
