So far, Mason has had a good weekend. He continues to come down on his vent settings, morphine and sedation. He is having more awake time and is moving around more than ever. This is due in part to his physical therapy sessions with his buddy Dan every week. He even pulled out his NG tube yesterday. His nurse was convinced that he did it because he was mad at her. Mason also discovered his right nostril and stuck his finger in there. I have some cute pictures that I will post soon :)
The docs are tentatively planning his last belly closure procedure to be on Tuesday. They are saying that they should be able to fully close him up. As long as things go as planned, he should be coming off the vent shortly after his surgery (maybe within a week).
Mason has also started to poop more. He had a large poop this afternoon and we all celebrated. I think the other parents in the room thought we were crazy. The docs had stopped feedings until they could confirm that this part of his digestive tract is working properly. He has shown us that it is...at least for now. Next on the agenda will be to get his stomach to accept and digest feeds. Mason is taking baby steps in the right direction.
Please keep Mason's buddy Noah in you thoughts and prayers as he has been having some bad days. He was scheduled to go home yesterday but this was put on hold because he was not tolerating his feeds. His parents just found out that he has an infection in his blood and he will need more time to rest and recover. We hope that he gets better soon!
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3 comments:
I love your page! I can't tell you how happy we are to hear Mason's continued progress. We will be keeping you in our prayers (as always) this week for his belly to finally get closed! It will be cause for celebration! One more hurdle over with! Keep scrappin' Mason!
Mason is a Superman! We are so excited for all 3 of you that he continues to make such great progress! And we say yea to the big poop too:)
Love,
The Krajenke's
Mason: welcome into the world. you are so strong and such a fighter it's no wonder they call you "rockstar". keep showing us your strength and your will to survive, we need people like you.I am proud of your continued progress.
Travis and Rosie, what wonderful loving and brave parents you are to endure such difficult choices in your young lives. God has truly chosen a unique couple for this task. May your love and strength for each other and Mason grow stronger each day. He is truly a magnificent miracle. god bless all of you. Thanks for sharing your journal, pictures, etc. with us. take care, love pat jilbert
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