Tuesday, June 17, 2008

New Look

Today Mason's page received a new look! We have been using the same format for over a year and decided it needed some freshening up. Look for some new items to be added soon. A live site feed was added today which shows the geographical location of the blog visitors (city, state). I saw it today on another CDH blog and thought it was a really neat idea. We will try it for a few days to see how it works. We are also going to get rid of the photo gallery link and will just try and use the blog to post our updated photos.

Mason has pretty much recovered from his cold. He still has a small post-cold cough but that seems to be disappearing more and more each day.

We did receive some good news from his pulmonologist last week. The oxygen trial software is in! Sometime in the next month, Mason will have a two night trial to come off of his oxygen at night. We are pretty confident it will be successful and will be thrilled to see all of the associated equipment leave our house.

We have some more good news regarding Mason's medications. He is no longer taking an iron supplement as his blood work looked good at his 12 month check-up. We are also instructed to try taking him off of his last reflux medication. The medication also aids in digestion so we are not sure if he will tolerate his bolus feeds without it. He has been off for two days and seems to be ok for now. For the next couple of weeks we will be watching him closely for an increase in gagging, etc. Mason is now down to one full-time medication! He is taking flo-vent for his chronic lung disease and he has an albuteral inhaler to take only if needed.

1 comment:

The Krajenke Family said...

New site looks great, the live feed feature is pretty cool.
We're so glad to hear that Mason is making such great strides and is a healthy little guy:)

Love,
Bethie, Allen and Austin