Mason is still doing really well with his G-tube. So far he is tolerating his feeds and has moved to continuous feeds that are plugged directly into his tube. We will continue these feeds for another week and a half and then move on to bolus feeds. We keep him on chimney feeds at night so that he can "burp" through his tube and stay comfortable.
Mason is still talking up a storm. He especially likes to be a commentator on football games. There is something about football on tv that really catches his attention. He is now able to have tummy time again but has decided he likes it even less than before. He would rather stand up. He has hit another couple of milestones this past week. He can pass a toy from one hand to another and when he is in my lap he can pull himself up from sitting to standing by holding onto my hands. I think Mason wants to skip all of the rolling over stuff and go right to standing upright!! Now that his incision has healed and he seems comfortable we are working on sitting without support again.
Last week we visited the Pediatrician for some more immunization shots and also saw the Pulmonologist. Mason's feeds were increased because he was not gaining weight as fast as they had wanted. Most of it had to do with losing weight after his surgery and then taking a couple of weeks to gain it back. If he hasn't gained enough in 3 weeks, we will have to change his formula from 24 to 26 calories. At our next visit, Mason will probably be removed from oxygen all together. They were actually planning on taking him off last week but saw that his throat looked red and were worried that he might be coming down with a cold. If so, it will be nice to have some supplemental oxygen at home in case he needs it. They also thought that the extra oxygen at night will help him retain some calories and hopefully gain weight a little faster. At our next appointment they will also reduce the amount of breathing treatments he is getting every day. We are also hoping that next time he will be completely "grown out" of his diuretics. He was almost there last week.
Tomorrow we will visit one of his Pediatric Surgeons to check on his g-tube and incision and hopefully get the ok to start letting him taste some cereal and baby foods.
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