Update

This week was going great until Thursday. We put Mason down for a nap and he was "out", or at least we thought so. A few minutes later, I went to check on him and he was laying there with his feeding tube (yes, the one that is supposed to be in his intestines) in his hand looking up at me. In a matter of minutes, he managed to wake himself up and pull out his tube! Travis and I freaked out because it was already 3pm and we would need to make a trip to the hospital to have another one placed (it has to be done by x-ray). So, after a few frantic phone calls (thanks Jeannie!!!) Mason and I were on our way to UofM for a 4pm appointment. We managed to get another tube in (a smaller one, which is much nicer than his old garden hose). Every single time (this was our 5th) the radiologist has difficulty getting the tube in because Mason's anatomy is so difficult. Each time they say that they will only try one more time (usually after a few unsuccessful attempts). We have been very fortunate that the last attempt has been successful in each case.

I must say that Mason was extremely proud of himself and had a smile on his face that afternoon. He was even smiling when we arrived at the hospital and while we were waiting to get called into radiology. I can't even imagine how good that felt for him, even if it was only for a couple of hours. Travis and I snapped a couple of quick pictures before I left since this is the first time we have ever seen Mason without any tubes on his face!

Mason has also reached another developmental milestone this week. Instead of just batting at his toys, he is now opening his hand and grabbing them. Sometimes he will even pull them toward him. I am sure that these new "grabby hands" are the ones that pulled the tube out!