Mason is tolerating his g-tube feeds very well. We have gone up on his feeds slightly to allow him a couple of hours "off" during the day. This is a huge help for me and allows me to carry him around the house without a pump or an iv pole. He is enjoying his freedom! After Mason had his g-tube put in, he started to refuse any bottle we tried to give him. He really protested and was having a meltdown every time we tried. The surgeons think that maybe he is having a hard time swallowing past his wrap and he will go in for an upper GI on the 18th to see. We are hoping that Mason will get his g-button in January. The button will take the place of his long g-tube and will be almost flush with his skin.
Mason will be starting physical therapy at UofM in the next couple of weeks. We will be going once or twice a week. At our last surgery appointment, our favorite therapist Dan came to visit (he took care of Mason while in the NICU). He did a quick evaluation and thought that some outpatient therapy would really help Mason. He is not too far behind, however he has mild torticollis of his neck. The basically means that the muscles on one side of his neck are tighter (on the ECMO side) and he does not have full range of motion. He spends lots of time looking to the left while slightly tilting his head to the right. Therapy will help him stretch out those muscles before it becomes a big problem.
1 comment:
OMG!! He's so big!!
Sounds liek things are all coming together.
Great news on people looking at the house!
It is HOrribly time consuming to get it perfect, all the time.
If we don't see you, have a great holiday. . . .we move into your parents old sub (south of Lyndon though) offically on Sunday (we closed on the 29th).
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