When we saw Mason today, he was a lot less bloated. A lot of the fluid built up in his body (added due to the issues with starting him on ECMO) was being urinated out. He was urinating so much in fact, that he also urinated out his cathetar. The doctors were pleased with his progress and decided that it was not necessary to replace it as long as he kept up the good work.
Also, Mason started making some movement in the last few days. He was so heavily sedated as part of the surgeries that he did not move at all for the first few days. However, today was acting like an All-Star. He was wiggling his toes, fingers, feet, hands, and even moving his legs a bit. It looks like his feet are as ticklish as both of his parents.
In addition, Mason was moving his mouth and trying to open his eyes. It looked like he may be trying to smile and suck on his respirator tube, although his tongue is still very swolen so it is hard to know for sure. The nurses saw him open one of his eyes while they were turning him this morning, although his eyes are also so swolen that it is nearly impossible for him to open his eyes other than when he is being moved. However he does flinch his eyelids and move his eyebrows quite a bit.
We also received good news yesterday that an ultrasound of his brain shows that there is no bleeding right now. Babies on ECMO have to have their blood thinned out to fit into the machines. A side effect of this is bleeding into the brain. So far he has been able to fend that off.
The doctors did take him off of two of his blood pressure medicines today. His heart and blood pressure responsed well.
One thing I wanted to make sure everyone knew about the upcoming hours, days, weeks, and months. The doctors have forwarned us that babies with CDH are very sick for a long time. There are a lot of ups and downs during this time, and we are still not out of the woods. The last two days have shown a lot of great progress for Mason. We thank God for this, and pray everyday that he gets better and better. However, we also know that everyday will not always be better than the previous one before it. We just ask that everyone keep Mason in your thoughts and prayers as all of those prayers seem to be working at the moment.
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2 comments:
We knew Mason would be a fighter:)We're so happy that he's showing signs of progress already.
We hope that Rosie is healing well and want you to know your still in our daily thoughts and prayers.
Love,
Bethie, Allen and Austin
Just found out about your baby Mason. He is from good stock & will feel all the love you, family & friends have. Know that all our love & prayers are with you. Take care
Love Craig & Lorrie
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